WHAT: The Annual Portland NF Walk will bring members of the larger metropolitan area together with friends and family for a fun-filled day that will include a raffle, food, and lots of fun!
NF Walks are community-based events organized by local volunteers to raise money for the Children’s Tumor Foundation, a non-profit organization dedicated to ending neurofibromatosis (NF) through research.
WHO: Individuals, friends and families.
WHERE: Oaks Amusement Park
Portland, OR 97202
WHEN: Sunday, July 24, 2016
8:30am registration
9:30am NF Hero ceremony
10:00am Walk begins
WHY: Neurofibromatosis is an under-recognized genetic disorder that can cause tumors to grow on nerves throughout the body. NF affects one in every 3,000 people; currently there is no treatment or cure. Money raised at NF Walk supports the Children’s Tumor Foundation, a nonprofit organization dedicated to finding effective treatments for neurofibromatosis.
REGISTRATION: To register for the event please go to www.nfwalk.org/portland
About Children’s Tumor Foundation
The Children's Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and may lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain. NF affects one in every 3,000 people, more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined. The Children’s Tumor Foundation funds critical research into neurofibromatosis. In addition to benefiting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community. For more information, please visit www.ctf.org.
